Friday, January 18, 2013

Not there yet

Well, it did sink in, but I'm not over it. I need to find my balance, my happy place. I had thought I had found it - and that helped me go through everything, but once I got another slap from life, I got thrown out of it again.

The silver lining is that the diagnosis is not idiopathic pulmonary fibrosis - the kind that gives you 5 more years to live from the time of the diagnosis, tops; it's the post-inflammatory pulmonary fibrosis, that has a little bit of a more lenient grip on you. You have a pretty good chance to make it past 5 years. By how much? I don't know. And thinking that I have been complaining of the wheezing for 2 1/2 years, that means that I had it then - your lungs don't start wheezing all of a sudden out of the blue sky. I think that what bothers me the most is the idea of suffocation. That is the one way I didn't want to go when my time comes. I'm terrified of suffocating. Back in 1991 I had double pneumonia. A very severe case of it. It took them a month almost to keep me among the living. Maybe it wasn't a month, it was only 3 weeks, but it sure seemed like 2 years. I still remember how I couldn't breathe, how my breath stank of pus. How I had not one, but two IVs that were bringing not one, not two, not three, but four different antibiotics in my blood stream, to try and fight it. and of course, being communist Romania, they didn't have oxygen, so I was fighting to breathe by myself. I remember how many times I was hallucinating because of the fever. The thin blanket I was covered with in the hospital seemed to weigh a ton, and I couldn't move it, and there were little leprechauns that could move it for me if I would bribe them. I don't remember what I had to give them as a bribe. But you get the idea.

I've been trying to snap out of it for three days now. I have a lot of things to do and don't seem to be able to pull myself together. I have to finish the Tree of Life website, to work on jewelry and sculptures and if possible, continue my online class in medical transcription. All I managed to do today was to write two articles on the website. Two. Well, I was also able to do some housekeeping, mostly laundry and some kitchen cleaning and cooking, but that was it. I am tired. I feel like I walked 100 miles pulling a millstone tied around my waist. I don't know how much of it is the chronic pain, how much is the pulmonary fibrosis or how much is me fighting depression. I do not want to get depressed. I know I sound gloomy, but I do have a lot of things planned. Depressed people don't have lots of things planned, things that are long-range, that imply that you need to be alive 2 and 3 and 5 years from now, right?

I can't wait for spring. This is how spring is - 4 years ago, my front lawn, March 8. The first butterfly of the year. Little did I know that that fall I would be wondering if I'll ever see a spring again. And here I am, almost four years later, and looking forward to spring. Because I know when spring comes I will be here, and working my garden. And planting parsley and dill specially for the caterpillars of the black swallowtail, so the butterflies would have a place to lay their eggs, and the pretty caterpillars something to munch on and grow and become butterflies. And the photo of the catterpillars thriving on the parsley, last summer.





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